Tag Archives: NAMI

A Long Overdue Update

Image: blank wordle computer game board

I just realized I never gave an update on my Covid experience. After 19 days of isolating, I finally tested negative and was feeling better. I had given a month’s notice at work, but I was out for 3 weeks. I only worked 2 days/week, so I went back for my final 2 days. They quickly improvised and had people sign a card and ordered cupcakes. It was nice.

I am not sure what I want to do with my time, now. I have been going to an activity center that I used to work at, as a member now, and participate in a group. It is a course that ends in 2 weeks. I think I will continue going to one or two groups/week after it ends. I give talks for NAMI, National alliance on mental illness. I did one over zoom and they played it on the tv at the center.

I do want to do other volunteer work, but I don’t want to commute or commit too much time. I have some opportunities already. I stopped working mainly because I was having trouble hearing. I got hearing aids at the beginning of the year but it has been hard to adjust, I am having another hearing test and they will clean the hearing aids in November. I want to get to where I can hear well, before I commit to any type of peer support.

I like playing little computer games. I finally tried wordle and I think it is fun. I usually can get the word but it takes a number of guesses. I find it relaxing.

About a month after I got over Covid my husband and daughter caught it. My husband travels and I think he must have caught it at a conference. My daughter is super careful, but she still caught it. She felt pretty lousy, lost taste and smell. She isolated for 10 days. My husband did pretty well, he took Paxlovid with no rebound. He was better in 5 days.

I have given up on making the coconut milk yogurt for now. I am making chia pudding with coconut milk instead. It tastes pretty good. I add fruit and granola.it is really easy to make. I have a recipe for a small volume but I make more. If anyone is interested I will post the recipe. You can use other types of milk.

I saw a video on internal family systems therapy. It looked interesting. I don’t know if I would be able to connect with other parts of myself. I searched for a therapist and found one but she does not work at the company anymore. They recommended a few other therapists. I don’t think the woman on the phone understood what I was asking for. I have a zoom appointment with a therapist on Saturday. She is on my insurance plan. I like the therapist I had/have?, but he only wants to see me as needed and I think I would feel more comfortable seeing someone on a regular basis. I can’t find much on the new therapist through google. Just on the company’s website.

I had an issue finding a psychiatrist my insurance would cover. I saw one who I liked, but I they first denied the claim and eventually changed to covering. I saw a different psychiatrist in the same office. I had a bad experience the first appointment. The next appointment was better. But, I found the other psychiatrist is in network now, so I switched back. I go in November. He does therapy, too, so that could be an option and I always have the one, as needed. I think he will retire soon, also,

My Week

Image: Yorkie with words you just won a free pet portrait from I’ll shoot your pets a $250 value!

I was at a Halloween event at Hala’s Paws pet store in Mission Viejo, CA. I entered raffles and won 2 prizes. A Target gift card and a photo shoot of my dog by I’ll Shoot Your Pets located in Temecula, CA. They came over to my house to take pictures bringing a toy and treats to get his attention. Raider was pretty cooperative, but grew restless by the end. He was laying on the couch so the photographer took pictures of him there. The pictures turned out great. I had the choice of a large canvas photo, 3 8×10 prints or a ceramic mug. I have a large picture my niece made with pastel on wood, so I opted for the 8x10s. Here is the link to the photos.

https://galleries.page.link/Q9XLV

I own a small amount of shares from a company I used to work at in the 1990s. I received a package in the mail of documents that they want to buy the shares back. I want to sell. The only thing is I misplaced the certificate and it is over $100 to replace it. Then I can sell and make a small profit. My friend says it does not sound legitimate. The company is definitely buying the stocks back. He just thinks I should be able to do it all electronically. I have never sold stock or tried to replace a certificate. I have the holdings statement. I am going to look through our files this weekend and try to find the certificate.

The hearing aids are in limbo, my primary dr got them authorized but it is not with the right company, so they are working to get that straightened out. I will have them by the end of the year. I just don’t know when. They can’t order without the insurance authorization so for now I am just waiting.

I am going on a walk for NAMI Orange County, CA tomorrow. I am bringing a friend and will see people I know there. I have a fundraiser on Facebook and the Nami walks website. I have met my goal and will add to my collection of T-shirts.

https://www.facebook.com/donate/326881332539007/?fundraiser_source=external_url

https://www.namiwalks.org/participant/359276

The position I applied to transfer to changed from full time to per diem weekends so I withdrew. I will keep my eyes open. Fortunately, I like what I am doing now. When I told my friend I was anxious just deciding if I should apply he said “ don’t suffer twice”. I wish I knew how to turn off precipitatory anxiety. Now, I can relax.

Have a nice weekend!

TikTok @Schizoaffectivedogmom

I made my first TikTok video https://vm.tiktok.com/ZM8DvPD97/ my username is @schizoaffectivedogmom I wrote a blog post early on about coping skills called Coping with Schizoaffective Disorder https://lorib434.wordpress.com/2017/03/20/coping-with-schizoaffective-disorder/ so I am starting with a series on coping skills. The first one is my dog because he is the best. He is cute and funny and likes walks and being pet.

Image: dog on bed

I will keep blogging. The reason I was drawn to TikTok is that I went to an online NAMI CA conference and someone recommended a few users on TikTok. I liked what I saw and would like to add to that. I am older and not very technologically adept so we shall see how long I last. I did make some periscope videos when those were a thing, but few people came.

I am doing well. I just took my dog, Raider, to a Halloween event at a pet store. They had treats for dogs and people, lots of dogs dressed up, raffles, an artist, a dog rescue with the cutest puppies. Raider gets nervous but he seemed to have a good time meeting the other dogs. I just put a bandana on him. I entered the raffles. One prize is a portrait of your dog which would be awesome. We have one that my niece made that I love.

My health insurance, including behavioral health, changes Jan 1. My psychiatrist takes the new insurance. My therapist doesn’t but can apply for continuation of care and if it is approved the new insurance will cover her. Otherwise, I found someone highly recommended who takes the new insurance but retires in 2023. I was really anxious at first but now I am calm since it should work out.

ETA: hey I won the pet portrait from I’llShoot Your Pets (gotta love the name). So excited! and a Target gift card.

What I Have Been Up To Lately

I had therapy last week. I started seeing this therapist after the pandemic, so all my sessions have been virtual. I forget what she asked but I mentioned I remember mistakes from the past, 20, 30 years ago or more and they torment me. She wanted me to share but I am not comfortable with that. I feel such shame and they were mistakes that I feel are unforgivable. If I did not feel shame there would be something wrong. But, I don’t want to delve into them.

My father did not believe in mental health treatment even though schizophrenia, schizoaffective disorder and bipolar run in our family. When I started therapy he discouraged it saying talking about the past just makes everyone sad. I did not understand what he meant until now.

My therapist wants me to work on forgiving myself.  I have to explain to her that some of these things are best kept hidden.

 

 

I have been able to stay alcohol free after my planned intoxication in April.  My plan is sobriety until our wedding anniversary in October.  It was pretty easy to get back to it.

 

 

I posted a link to an In Our Own Voice presentation I did for NAMI, National Alliance on Mental Illness, in a different post. I have not been speaking much lately. I saw a different program by NAMI called VOICES. It is geared towards first responders. I signed up to be a speaker, but am having trouble figuring out where to start. My initial interaction with mental healthcare and police was not until I was 39, but since mental illness runs in my family that was not foreign.

My brother had a psychotic break in college at 20 (I was 15). He refused treatment and would get picked up by the police for 72 hour observational holds in the late 70s. His is a sad story. He was severely symptomatic for 6 years when he finally was placed on a different medication that he responded well to. But, he started becoming symptomatic again, paranoid, edgy, and probably needed his medication adjusted. He went to Yosemite while symptomatic and fell at a waterfall. I don’t know if it was accidental or not, but he died from the fall.

This is supposed to be a story of hope, but it is part of my story.  If I had not seen him so ill for so long I may not have accepted treatment, but I did not want to be stuck in psychosis like he was.  I think it is okay for first responders, but not sure if it will scare the general public who may be worrying about their own children.

My story is much different.  I did go in and out of psychosis for 3 years, but I have been stable since 2006.  I have not been hospitalized for 16 years.  I am married, have healthy grown children, work part time.  I still have some doubts about what was real from the past, but I can function.

 

In Our Own Voice Presentation

Yesterday I did a presentation for NAMI Orange County on my recovery.

https://us02web.zoom.us/rec/share/8I-z9RKNONCJ958C7klIYBjCf3ZzCXs_BD743CKZD0QUzGcCtPbtjjVcYygq5hk.nKTSbzmA_Jj3DrvG


Passcode +6$T%coQ

Why I Support NAMI (National Alliance on Mental Illness)

I was first introduced to NAMI when a friend told me about their Peer to peer program. I had heard of family to family, another of their signature programs. I signed up and was assigned to a class when one was starting up.

There were other people like me in the class and the mentors were doing well. That was the first time I had heard of recovery. We learned about relapse prevention, our illness, goal setting, advance directives and much more. We had a mindfulness exercise at the end of each session, I enjoyed it and even though I get really anxious, I signed up to mentor. I moved from that program to In Our Own Voice sharing my story of recovery. I still do those presentations.

I work as a Peer Mentor, but until very recently there was no standardized training. I took a mental health paraprofessional course years ago, have years of volunteer and work experience and recently took the NAMI Peer Support/Family Support Specialist training.

They also have support groups both for consumers and family, a warmline, and other programs.

The OC Warmline is only for Orange County, CA residents

Call or text: (714) 991-6412
Toll Free (877)-910-9276

They have an annual walk to raise money through donations. This year it was a virtual scavenger hunt. Usually it is a 5K walk. I walk to support NAMI because they have so many resources and have been able to help me and others.